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Perceptions of Brain-Injured Teenagers, their Parents, and Professionals Involved in their Social Inclusion

Jérôme Gauvin-Lepage, Hélène Lefebvre

The intention of this qualitative study is to explore the way in which adolescents, their parents and professionals perceive the social inclusion of adolescents who have suffered a moderate craniocerebral trauma (CCT). Our terms of reference will be Bronfenbrenner’s ecological model (1979, 1986), as adapted by Lefebvre and Levert (2005) for use with a CCT case mix. Semi-structured interviews were carried out with brain-damaged adolescents and their parents. The results show that families’ perceptions touch on different aspects of their lives, pointing to a wide range of repercussions that may facilitate or restrict the social inclusion of an adolescent suffering from a moderate CCT. In general, professionals share these same perceptions. The results of the present study should offer health professionals a better understanding of social inclusion as experienced by these adolescents, while at the same time providing the former with guidelines allowing them to better support the social inclusion of CCT adolescents and to help families living through this difficult situation.